Domains of health-related quality of life in age-related macular degeneration: a qualitative study in the Chinese cultural context

in asia •  7 years ago 

By a News Reporter-Staff News Editor at Nursing Home & Elder Business Week -- Research findings on Eye Diseases and Conditions - Age-Related Macular Degeneration are discussed in a new report. According to news reporting from Chongqing, People’s Republic of China, by NewsRx journalists, research stated, “To explore which areas of health-related quality of life were affected in Chinese patients, and to identify whether the areas are well covered by validated questionnaires. A qualitative study based on semistructured interviews was conducted.”

Financial supporters for this research include The Army Medical University of Humanities and Social Science project, The First Affiliated Hospital of Third Military Medical University Innovation Research Grants.

The news correspondents obtained a quote from the research from Third Military Medical University, “A qualitative thematic analysis following the approach of Colaizzi was used to analyse the interview data for significant statements and phrases. The themes and subthemes organised from the analysis were then compared by using the following current instruments: National Eye Institute Visual Function Questionnaire (NEI-VFQ-25), Macular Disease Quality of life Questionnaire (MacDQoL) and Low-Luminance Questionnaire (LLD). Twenty-one patients with age-related macular degeneration were recruited from the eye clinic of Southwest Eye Hospital in Chongqing, mainland China. The mean age of the participants was 69.8 years (range 57-82 years) and the duration of the disease ranged from 3 months to 6 years. The qualitative analysis revealed nine important domains including symptoms, difficulties with daily activities, depending on others, depression and uncertainty, optimism and hope, social isolation, role change, family support and financial burden. However, all the three questionnaires were insufficient to capture the full extent of quality of life issues of Chinese patients with AMD, and MacDQoL covered more domains when compared with NEI-VFQ-25 and LLD. The domains of concepts important to people with AMD in the Chinese culture are not fully represented in the three widely used questionnaires. Nine important domains were identified for the assessment of quality of life and should be considered when assessing the impact of AMD on Chinese individuals.”

According to the news reporters, the research concluded: “Further studies are needed to develop an AMD quality of life questionnaire, better tailored to the needs and culture of Chinese patients.”

For more information on this research see: Domains of health-related quality of life in age-related macular degeneration: a qualitative study in the Chinese cultural context. Bmj Open , 2018;8(4):e018756. (BMJ Publishing Group - http://group.bmj.com/; Bmj Open - http://bmjopen.bmj.com/)

Our news journalists report that additional information may be obtained by contacting W. Bian, Southwest Eye Hospital, Third Military Medical University (Army Medical University), Chongqing, People’s Republic of China. Additional authors for this research include J. Wan, G. Smith, S. Li, M. Tan and F. Zhou.

The direct object identifier (DOI) for that additional information is: https://doi.org/10.1136/bmjopen-2017-018756. This DOI is a link to an online electronic document that is either free or for purchase, and can be your direct source for a journal article and its citation.

Our reports deliver fact-based news of research and discoveries from around the world. Copyright 2018, NewsRx LLC

CITATION: (2018-05-06), Researchers from Third Military Medical University Report Findings in Age-Related Macular Degeneration (Domains of health-related quality of life in age-related macular degeneration: a qualitative study in the Chinese cultural context), Nursing Home & Elder Business Week, 162, ISSN: 1552-2571, BUTTER® ID: 015571699

From the newsletter Nursing Home & Elder Business Week.
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