Back to square one 1βƒ£πŸ™„πŸ€¨πŸ˜₯

in congenital β€’Β  6 years agoΒ  (edited)

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Life of a tubie child is not easy. You just don't know what is going on internally. Some said it is the complication of fundoplication surgery. Some said it is reflux. We just can't be too sure. The most the child can describe is pain so he refuses to eat. It has been a journey of ups and downs since we taught him to eat 7 months ago. At times he eats happily. At times he just did not. And the best I could do as mummy is to replaced food intake with tube-feed. It can be demoralising when your child says he wants to be tube-fed whole life. But no. I ain't gonna agree with that. If I don't give up on Steemit when SBD/Steem doesn't look good, I am not going to give up on him when he is not eating well. Putting up lots of hope and positive vibes that he will be well soon and back to eating orally.


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Β  Β· Β 6 years agoΒ (edited)

Without our moms, where would we be? The person he becomes because you were vigilant will thank you.

Thank you so much @r351574nc3 for dropping by and leaving me a thoughtful comment. 😊

Β  Β· Β 6 years agoΒ 

Keep up your faith and be positive all the time! It won't be a smooth journey, but I'm sure you both can make it to the destination...

Looking forward to the destination @wilhb81. And sometimes just look to God and not the storm. The storm is unpredictable.

Thank you for your love and support @wilhb81. On behalf of Jansen.

My prayers are definitely with him @iamjadeline ! He is one tough kid and I can understand that he is frustrated with unable to digest the food he eats.

I hope that in time as he grows bigger his immune system is stronger so is his intestines that you can weed off from tube feeding. I know God has a great plan for him as we can see that he is the living testimony of how strong his mom and dad are sustained with all sorts of help.

Stay strong my dear girl! You are truly an inspiration to many mothers out there!

I agree he is one tough kid. In a way I am toughen up because of him.

I also 100% agree through him I see alot of helps from many people as well as God's promises spoken into him many many times.

Thank you @littlenewthings and I am praying for the wellness of your mum too.

Let's continue to keep each other in prayers then.

Β  Β· Β 6 years agoΒ 

My wishes are always there for this kid. I can feel the pain of that kid, such an innocent kid has been suffering from pain at this age. How much time does that kid need to get rid of that tube?

Thank you @samkhan for dropping by and commenting. He can only get rid of the tube feed once he can eat well and eat enough. We are praying he will reach there. :)

Β  Β· Β 6 years agoΒ 

I am praying too.

You're amazing Pastor @iamjadeline .

You're an amazing mum and that really inspires me to be an amazing , Godly , loving mum one day to my own kids.

Jansen is gonna grow up to be a man that will speak forth testimony upon testimony of how amazing God is in his life by having amazing amazing God-fearing parents in his life.

sending so much loves and hugs!

Β  Β· Β 6 years agoΒ (edited)

You are gonna be an amazing mum and an aspiring believer πŸ’•

Thank you so much for uplifting words and support.

Wow :O Just got to know about this.
I agree it can be demoralizing!
But, yes, your healthy mindset and belief will overtake and rewire his own limiting ones :)

Thank you @reconstitution :) for encouraging words. 😊