New: cdhAll contenthive-129948hive-196917krzzanhive-180932hive-183959hive-166405photographysteemhive-185836uncommonlabhive-144064bitcoinhive-150122hive-145157krsuccesshive-188619hive-101145hive-183397hive-109690hive-124908lifehive-139150hive-184714hive-193186TrendingNewHotLikersusertang (43)inย krย โขย 5 years ago์ฌ๋ ๋ฒ์งธ ๊ธฐ๋ก๋ด ์ธ์ ์ต๊ณ ์ ๋๊น์ค! ๋ช ๋+๋๊น์ค+ํ ๋ผํผ๋จ ์์ค+ ๋ค๊ธฐ๋ฆ์ ๋ฌด์น ์์ฃผ ์ต๊ณ ์ ์กฐํฉ์ด๋น ๐คญ๐ฆ ์ธ์ ์ฌ๋๋ค ๋ชจ๋๊ฐ ๋ง์ ๋ดค์ผ๋ฉด ์ข๊ฒ ๋น ๐ฅณ Posted using Partiko iOSiamjadeline (69)inย congenitalย โขย 6 years agoBack to square one 1โฃ๐๐คจ๐ฅLife of a tubie child is not easy. You just don't know what is going on internally. Some said it is the complication of fundoplication surgery. Some said it is reflux. We just can't be too sure. Theโฆiamjadeline (69)inย healthย โขย 6 years agoMy Petite SonDoctor said he is so small and definitely "poor weight gain". He will be 4 years old and 2 weeks time and he weighs 10.55kg with height 91.4cm. Mummy and daddy have tried our best yet there isโฆiamjadeline (69)inย lifeย โขย 6 years agoTrying to smile in the stormIt's heart-wrenching to see son's condition with chest infection. Needing nebuliser, suction & on the strongest antibiotic. Hopefully he can pull through this ordeal, although I'm worried due to himโฆiamjadeline (69)inย steepshotย โขย 6 years agoImpromptu trip to ERAfter few days of bouts of fever and cough, we headed off to ER to have our son checked. Due to him a CDH-er, we could not afford any risk. So the main culprit is bacterial infection which causedโฆiamjadeline (69)inย lifeย โขย 7 years agoMy CDH survivor is back to normal mode now! Yay!After feeling very uncomfortable for past 5 days, almost 24 hours lying down and of course all feed were done via stomach-tube, at last he gradually felt better. And starts to eat too. Indeed is THEโฆiamjadeline (69)inย lifeย โขย 7 years agoJansen opened his eyes at ICU!We were told not to record video in the ICU. But we were unsure of the future. So the moment Jansen opened his eyes, we could not help but to video....secretly... ;) โถ๏ธ DTube โถ๏ธ IPFSiamjadeline (69)inย cdhย โขย 7 years ago2-in-1 surgeries when Jansen was 3-months-oldAfter his diaphragmatic hernia's surgery, he continued to rely on different types of breathing machine and at 2-week-old, he started being fed mummy's milk via NG-tube (naso-gastric tube meaningโฆiamjadeline (69)inย lifeย โขย 7 years agoJansen's 1st surgery at 6-day old: To fix diaphragm herniaThis was the 1st surgery performed on Jansen that left me crying my eyes out and there was no faith and no hope found in me. It was the moment I gotto prepare myself to lose him. Merely due to theโฆiamjadeline (69)inย lifeย โขย 7 years agoFrom "stomach-feed" to "mouth-eat"We started tube-weaning Jansen since 1st December this year and oh my the journey is tougher than I thought it is. (If you want to know more about what happened to Jansen, my 2nd son, I postedโฆiamjadeline (69)inย lifeย โขย 7 years agosteemCreated with Sketch.New 'earring' for his stomach has arrived!Today is my husband's birthday, but instead of him receiving present, he received a parcel today which is'present' sponsored by Jansen's grandma for Jansen! Thank you to darlingi! Thank you toโฆiamjadeline (69)inย dtubeย โขย 7 years agoChanging new Mickey feeding buttonThis video is to show how I take out the old Mickey feeding button and insert a new one into Jansen's stoma (stomach hole). โถ๏ธ DTube โถ๏ธ IPFSiamjadeline (69)inย lifeย โขย 7 years agoTube-feed journey: The worst nightmareDuring tube-feeding yesterday morning, we heard a gentle "thud" then stared in disbelief. "Oh my, Jansen's feeding button has dropped out!!!" "Where? Where? No more button at my stomachโฆiamjadeline (69)inย foodย โขย 7 years agoWhat does a tubie (tube-fed human) eat?Usually the easiest way to feed my son via g-tube is formula milk specially designed for tubie. It is always being advertised that the formula contains everything that your child needs for balancedโฆiamjadeline (69)inย lifeย โขย 7 years agoEver sleep and eat at the same?Many don't get to experience eating and sleeping at the same time. But my son has this opportunity as he is tube-fed and got to be fed overnight due to insufficient calories throughout the day.โฆiamjadeline (69)inย introducemyselfย โขย 7 years agoBig HELLO to all Steemians! This is a long intro, so thank you in advance for time & love ๐So back in July 2014, at 30 weeks of pregnancy of my 2nd son Jansen, my husband and I were told that our son has right-sided CDH. Just three alphabets "CDH", congenital diaphragmatic hernia, ourโฆ
