New: cdhsurvivorAll contenthive-129948hive-196917krzzansteemhive-183959hive-180932hive-166405photographyhive-185836uncommonlabhive-150122hive-183397hive-144064lifebitcoinhive-188619krsuccesshive-139150hive-101145hive-103599hive-124908hive-109690hive-184714hive-180301TrendingNewHotLikersiamjadeline (69)in hive-193186 • 3 years agoRespiratory AppointmentRespiratory appointment today for Jansen at Pediatric (Respi Department). Thank God it is not crowded at all, I am sure they reduce the amount of patients per slot of time. And for this round, they…iamjadeline (69)in wherein • 4 years agoScoot scoot scooter....The long awaiting scooter has arrived. The youngest son was soooo happy, just look at his excitement staring at the box, waiting for it to be opened. I bought this at super cheap price, with the…iamjadeline (69)in wherein • 4 years agoMy Little Champ! ❤️We are at this journey again. Unexplainable abdominal discomfort which called for tube-feeding because the little one cannot eat nor drink. He felt painful. Doctor may know why but also knows…iamjadeline (69)in wherein • 4 years agoIn a blink of an eye 👁️6️⃣In a blink of an eye, my little champion turns 6 years old. 6 years ago, we could never dare to look into his future. What we saw was him attached to tubes and breathing support. Beeping machines…iamjadeline (69)in life • 5 years agoPrecious Quality TimePast few days wasn't an easy one for me (us) at home. My youngest had his bouts of internal pain again (not going to elaborate anymore but yeah, it was post-surgery complications which would be…iamjadeline (69)in life • 5 years agoUpdate on my CDH survivor champHi Steemiverse, How is everyone? We know people are staying home, finding the new norm, adapting to the new lifestyle while the earth is healing. Somehow, we have to stay positive as much as we…iamjadeline (69)in appics • 6 years agoHe has one of his dreams fulfilled. Often, he saw on video other children jumping ...... happily on trampoline and he did mention once "how nice if we have one at home, then I can jump whole day". And he got to do it during his Occupational Therapy session at hospital the other…iamjadeline (69)in appics • 6 years agoIt had been a longggggg day at the hospital. Usually the waiting time is wayyyy longer ...... than the consulting time. According to Professor, Jansen seems to be improving from his previous state. And we are hoping as he grows older, more complication will subside. Met with dietician…iamjadeline (69)in share2steem • 6 years agoLunch for the little oneToday, Jansen is feeling hungry earlier than expected. That is always a good news to momma's ear, considering he is picking his eating tolerance. Good thing I have steamed drumsticks and fried rice…iamjadeline (69)in share2steem • 6 years agoMy prayer is you will be as strong as Popeye, or stronger, lolVideo - Click on the Image to Play And he eats the spinach soup with anchovies broth. Good thing I add in potatoes and eggs, because he didn't want rice at all. This time I add in also ginger…iamjadeline (69)in life • 7 years agoLearn to see beyond the scarBelieve it or not, until today, I am still emotionally and mentally affected by what I see. Scars and CDH baby. What to do? I am the mummy. But I am also learning that beyond the scar is a survivor…iamjadeline (69)in update • 7 years agoUpdate on Jansen #4You notice it is a different background because yes, we are in the comfy of the car on the way home. Phew! We had spent a week at hospital. Now it is time for home sweet home. Thank you once again…iamjadeline (69)in update • 7 years agoUpdate on Jansen #2 (Thank you Steemians from the bottom of our heart for your lovely & generous support. We are so touched and beyond grateful)He had nightmares-aggressively pulled out his biPAP mask and screamed+cried. Anyway he slept from 3am till now 8am without mask on. So far so good. Doctors' plan: Gradually reduce suctioning &…iamjadeline (69)in update • 7 years agoUpdates on Jansen1stly, we want2thank everyone who support in all ways. We are beyond grateful. Will make a post on it when we are discharged. This is Jansen after suctioning. He hates the tube going into his…iamjadeline (69)in hospital • 7 years agoGreatest birthday gift - my son is still alive!Despite the fact he has RSV, the nastiest bug that imposes risk to his small lungs, but up till today he fought a great fight. He is still by my side and alive-my birthday wish for today. As of now…
