Luna's eye saga continues with repeated testing & delays to the MRI scan

We drove three hours across France yesterday to see the best this country has to offer in children's eye specialists. In the above shot you can see clearly how Luna's magic eye is dilated and unable to look to her right, as the other is doing.

I call it magic because the truth of it is that we have no idea how she sees the world through it. She is too young yet to tell us much about it, but we have at least confirmed she can see through it.

We have noticed three things about her magic eye which make it different to the other:

• constantly dilated pupil
• can't look right
• fractionally droopy eyelid

It was confirmed yesterday that these three things are actually connected by a common nerve, which is a good thing because this makes it less likely to be related to the long list of bad things we were previously told it could be.

During the last six months we have seen a total of four doctors in our nearest city Perpignan, the last of which suggested we see the specialists in Montpellier where they can give her an MRI (brain scan) so that we can put all this silliness behind us.

A day trip to Montpellier

Instead of just giving us the scan they insisted on spending the entire day repeating tests which had already been done in Perpignan. Am not sure if this was through lack of trust (for the provincial doctors) or lack of access to information. Interestingly, blockchain tech looks set to solve the latter of these problems.

The laughable wooden bird

The test they wanted to repeat was this:

Holding her head still we had to get her to look left, right, up & down multiple times and the most advanced thing these 'specialists' had to get this job done was a wooden bird on the end of a pen.

Cutting edge stuff. Not all that surprisingly this held her attention for no more than a few seconds, never long enough to complete the full examination, no matter how many different coloured birds on pens they pulled out of their top pockets.

How is it that in this age of technology a bird on a pen is the best we can come up with?

Why not something with flashing lights? Or better still, something like a small screen playing a film, so there is both audio & visual?

Dare I say it, it was almost as if these doctors wanted it to take a long time.

Three doctors later they managed to establish the same results as the Perpignan doctors and finally, right at the end of the very long day we were referred to one final doctor who told us we should have an MRI scan to be safe.

Yes, we know that already! Isn't that why we travelled half way across France???

Apparently not. It was just to repeat basic tests and be told to return in three months.

Personally I feel ready to let all of this go without the scan but all these doctors have done a great job at injecting fear into my partner Sabrina, who now feels like the scan is essential.

So, it will be done.

Eventually.

For those of you not familiar with the outstanding cuteness of Luna, you may enjoy her Bitcoin prediction here, shot the day before our hospital trip.

Finally, just to change the subject, I have included this panoramic shot captured a few days ago, showing a hail storm across the other side of the valley from us.

Feels beautifully dramatic with the setting sun.

How lucky we are to live here :)

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