One of the most frustrating things about Parkinson's Disease is you NEVER stop moving.
Even when everyone thinks you are sitting still, you are STILL moving! Micro twitching of the muscles NEVER STOP! Muscle failure, cramps, lactic acid build up, the shaking NEVER stops! The only thing that changes is the intensity. Even if you take drugs or use fancy machines to shock the brain or those other technological advancements.
YOU STILL NEVER STOP MOVING AT SOME RATE!
Most of you don't know or understand the implications of nonstop movement 24hrs/365days for life. For me it means being always tired, always fighting to stabilize, restless nights, minimum sleep, constant aches, and incessant itching, skin crawling, a loss of focus and concentration, and a struggle to stay motivated to do anything.
And there is NO CURE for it.
You just have to suck it up and get over it. It's a 24hr/365day battle that wont end until I die and only get worse. A battle the likes a majority of you will hopefully never know.
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Your post touches me a lot.
In medical school we learn a lot about the physiology and medical aspects of this horrible disease. But despite our efforts to understand how patients feel about their quality of life, we will never be able to fully understand how uncomfortable this disease is. I hope that someday Science will find a way to improve the quality of life of these patients and treat this damn Parkinson.
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Thank you...
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I knew about Parkinson's but of course, have not lived with it. I never made the connection about never stopping moving, even in sleep. That has to be the worst, not sleeping well. It makes everything worse. :((
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It sucks but you deal or suffer.
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