The patient experience has often been a private endeavour shared somewhat with a number of healthcare professionals and close family.
Health can be private, however in this interconnected world people are telling their story in many media including now video. It seems like every teen right now would like to be a youtuber and with teens viewing youtube a great deal -my sample of n=2 confirms this these new media are new ways of influencing behaviours that many brands have attached themselves to .
However my point is from a healthcare persective what do we learn from this. Youtuber Victoria Taylor (@dreamingofmedicine) has recently been speaking (unfortunately there are no videos currently showing on her site) about her experiences of severe asthma with great practical insights on how it is to live with severe asthma and how to manage it.
For some people video and vlogging is a way of life. I got chatting to a couple of guys in a queue in Cologne Airport some months ago, they were vlogging, I followed them and their work was good and their energy superb. It then happened that one of their founders @sociallypowerful received a diagnosis of leukaemia and has been vlogging the experience in a very human and sometimes raw way.
https://www.youtube.com/channel/UCGodMQ9NGKGwql9siXP4OFg
Is the healthcare ecosystem learning anything from these Vlogs? Is anyone systematically pulling these together, using them in meded? How do we make sense of what everyone is saying
Is this not truly a way of listening to the patients? or just adding noise?
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