Update

in help •  7 years ago 

Dear fellow steemians, it has been a very challenging and unpleasant time for me lately. I didnt realize how much i took for granted the support that my ex girlfriend had given me and i find myself in dire straights. Somehow my Ssi check hasnt arrived and its causes complications left and right. I have some morgellon filiment that is terribly active in my left jaw that is driving me mad. I am holding tight at the moment but i despair and am reaching out to help within my community here in marshall. I have to remind my self that no man or woman is an island although since misty found someone new it sure does feel like one.

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I have morgellons. I take coconut oil with a bit of eucalyptus oil and tea tree oil, add a little epsom salt, mix well and use that. I also take epsom salt baths. Those help the most.
If you ever want to chat.... i understand.

Im fighting it fierce this morning. A filiment through my jaw neck is destroying me. I cant help think that if i can approach it at the right angle i will be able to remove it. This is faulty reasoning and i know it. It is overwhelming. Ive been at it for more than an hour.

Networked smart sores. Ive had this batch for almost a year. I was clear for a year and a half before that. Had it since 2007-2008. The plaques from the sores dont get processed they are left there as sharp irritants i find myself having to remove the dermis above it to get them out.

Do people think you are crazy? I can recognize it in other people. When I first figured it out, I told a few people, but no one wants to hear it. And yes, the sore will not heal until the filaments are gone. University of Oklahoma did a study and said the white things are collagen and the black fibers are some other natural thing our bodies do. There is a part of me that thinks its bullshit. It is definately from the lyme bacteria though, as all people with morgellons seem to have lyme as well. Have you found a doctor that will listen to you? I have not as of yet.
I would suggest the coconut oil mixture i stated. It pulls it right out.

Oh ive been through the ringer. Dermatologist criminal dx me with trictolomania, runner up to delusional parasitosis. Prescribed dangerous medicines that impaired my ability to work. I was working as a music therapist in a psychiatric inpatient environment. After a few years of it and countless visits to the doctors i found out about morgellons and the botched kaiser permenente cdc research upon unknown dermopathy. Within a year of learning about it i was divorced, unfit for duty at the job. Filed for disability. Lost my house and estate and pretty much was on a death trip when i traveled to austin texas for the sixth annual CEhF morgellons conference where i found out about,as you said , the correlation to borrelia burgdorferi, lyme. My friends, family exwife all thought i went mentally ill. And yes i was but first and foremost it was physiological not psychological. Thats what i told the judge too. I won disability not from lyme but from psychological adjustment disorder. Smdfh. Long story short i survived the death trip had a visionary exp in the dead lands of the dried up rio grande. On and on the story gets worse.

It took 5 years to diagnose me and in that time I have been diagnosed with fibromyalgia, migraines, ibs, arthritis, degenerative disk disease, bi-polar, lupus, my vision is fading fast, lots of dental issues, etc. etc. etc.

At this time in my life, I had the same nurse practitioner the whole time. She saw the bullseye on my arm and was still reluctant to name it as lyme. I had two different dipstick tests through Labcorp that stated no lyme. I went to Dr. Erias in New Jersey. She drew blood and found the lyme parasite in my blood. There is no denying that.

I have had morgellons for a few years now. I am getting familiar with the cycles of it.

I recognize it in others. Many, many people have it. At first I tried to tell people, but because it is not recognized, they do not accept the information.

I have to leave for the day. I will check in this evening! Have a great day.

Hope you are having a great day also. It both hurts and helps to hear the stories of others journeys through the confusion. I shared in a contest tonight an older post about my journey and i thought you may enjoy the spectacle. https://steemit.com/contest/@svosse/43rd-daily-steemit-upvote-lottery#@jazzresin/re-svosse-43rd-daily-steemit-upvote-lottery-20180302t030452131z