I keep no secrets about having Multiple Sclerosis (MS) and Fibromalgia, I have a few autoimmune disorders/diseases, but they don't take over or control your life like MS and/or Fibro. There are many days, I feels as though I have been hit by a train...a dozen times, really my hair on my head even hurts at times. These two diseases are so unpredictable. It's like living life on a rollercoaster everyday...My problem is, I have NEVER liked rollercoasters!
I try to stay positive on a daily basis. I mean who doesn't enjoy hugs, right? We all love the feeling of hugs...unless your muscles hurt or maybe it's your skin...now an MS hug is one hug that you can keep! It is painful and can come suddenly, stay with you for days...make it difficult to breathe and sleep.
I must stay cool. Remember the days of the huge boomboxes on everyone's shoulders? Lol If I had the strength and a long enough extention cord, that would be me with an air conditioner. Haha. I stay inside, I hobble to the car and turn upthe air conditioning, and I often wear my vest with ice packs. Allowing myself to get too warm and I lose the use of my legs.
The fatigue makes me seem lazy to some. My daughter-in-law and I have battled over this. I am in the process of buying myself a camper and moving out of my home. I am taking MY life back! Imay have to live with MS and Fibro, but my daughter-in-law is not going to run my life! LOL. I see my neuro in the morning and I will inform him of my life changes. Less stress is always a good choice.
I hope y'all enjoyed the small look into my life. I try to keep it light and funny as much as possibly, everyone says I'm a dreamer! ☺