Dear Life: Tapering my Liquid Intake

in life •  7 years ago  (edited)


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Today I had my regular dialysis, it went well but I didn't finish the session because my blood pressure went down that it had to be stopped because I couldn't tolerate it as I could go into a shock or lose consciousness not to mention that it is really an uncomfortable feeling to have a hypotension or lowering of the blood pressure. So I didn't finish the remaining 19 minutes of blood cleaning, I am also having some cramps that time and until now I still am experiencing them.

But with the hypotension, one thing happened, an extra fluid was taken out from my body. It is sometimes characterized by hoarseness of voice when the patient speaks and is brought about the physical changes on the body and throat included and the vocal chords. It is something like the reverse of what happens when after waking up, your voice gets fuller when you begin to speak after sleeping because the fluids on your head and neck is still equalizing to the body and after the blood gown down, the voice goes normal again.

But I have had a bad day a few days before my dialysis session toda. I really had some trouble breathing and lying down in any position didn't give any comfort so I was sleep deprived. But after the dialysis had taken extra water from my body and I felt a relief, I had identified the problem, it was the fluids that causes my breathlessness. But it is a problem for me to taper off my water intake because I am presently not drinking too much now really, a much lesser amount than the recommended amount that I have to take each day.

Now, to be much comfortable between dialysis sessions, I have to even much control my fluid intake so that I will do considering I am not drinking much already. The past few day really scared me as I see myself like drowning, and not being able to breath makes me realize that I may die in the most difficult way like that of a strangulation if something isn't done to solve this breathlessness problem that I am experiencing lately. I really do have to consult a specialist for my bones and have it corrected, but my hands are tied and only could do much. Right now I have to taper off much fluid intake as a temporary solution and make much of each day that I can still live and breathe.

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My late mom went through dialysis too. She had been diabetic for more than 20years, and had complications after, one leading to her needing to undergo dialysis. Because of her diabetes, she wasn't a prime candidate for organ transfer. I'm not sure if you've already shared this in your previous posts, but is this an option for you?

Hi @dreamiely
I am sorry about your Mom's passing but it is way better dying than having to suffer like this.
It is also not an option for me to undergo a Kidney transplant because the type that I have is recurring one. It means that my body's own immune system will attack my Kidney once again if I get a transplant. That and the money that will involve the expenses are only some of the reasons. So I went on andd hold up until a major complication on my bones today.
Thank you for the support.

Hi @cryptopie
I am sad to read about your suffering.
For me, lying down at bedtime is a comfort I look forward to each evening. To read that you are unable to get comfortable, or even breath sufficiantly, is sadening. It just doesn't seem fair.
I really hope for you to experience a change for the better.
Your post has made me more grateful for what I have.

Dear @susieisms
Yes it is hard and it scares me as if I would drown. I am in a tight position now of controlling my liquid intake so it adds to the day to day problem. Now I got some relief of unloading extra water through dialysis so I will just try to manage it from here on.
It is true that having a healthy body and a loving people around us is a gift already and we have actually nothing more to long for and all things are just a bonus.

  ·  7 years ago (edited)

Easy to say for me. But please drink enough my friend. But you know best, how to handle your situation.

Peace bro

Thanks @markush I am drinking enough but I must control it now or I will have a terrible time breathing, it is scary when I can't breathe, it is like a torture.

Does someone help take care of you?

Both my parents @neoxian
But they are getting old and I am worried that if I outlast one of them, it is a major problem yet again. But I am just doing what I can to support all of us here in our home and not be much of a drag.
I appreciate your support. Thank you very much as always.

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