My life mission during the times where I was pretty much dependent on my brother to help me out financially is to only get dialyzed regularly and that's it, it is because I am clueless of what really would happen and is happening in my body and my Nephrologist have not educated and informed of the already brewing bone condition which already began a few years earlier until changes in my appearance went suddenly parabolic and people in my family seems to be also try to play it down because for one thing, they can't say "go to the doctor" because they cannot or willing to help me out where my parents really can't do much either. People had treated me as a subhuman which is worthy of being just seen, turn their head the other way and ignored, I also had experienced being belittled in many ways including a mockery of my abnormal appearance, all of that negative reactions because of my appearance. I am not using a mirror that much until one day I did stood in front of our old mirror and saw this unfamiliar face, believe it or not I was surprised looking at this creature which explains why I catch people's attention.
My current appearance is quite better now but I would not take-off my medical face mask because I would just be a head-turner in a negative way for sure for the reason that I have an abnormal head appearance. But using a face mask, it would make me feel better to be seen in public. I just want to reiterate that public perception about people with problems with their appearance always appears to be very rude all the time although in professional world where they understand your medical condition you can expect a different kind of treatment. I would often ask for an apology to people whom I would meet about my appearance like a new nurse or a bank employee or officer because of the extent of the disfigurement of my face and it shocks or upsets people so that they will not be as surprised and understand my medical condition. But thanks to God my face is not much that problematic as the bone enlargement had subsided and now my only hope now if God wills it that the facial bone would subside even more from now.
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