It has been hard now that I have a stitch on my belly, of course it is painful but it is not the pain but my difficulty in breathing when I do get up. I struggle to breath as is only two ounces of air by volume comes in when I breathe in thanks to my curvier backbone.
When I do get some good funds I will have it straightened out if that is a possibility so that I could breathe much better. The order of the day is that I have to improve my bone health and diminish the pain and of course earn some funds for my ill-fated backbone.
With my recent surgery I have found out that I am for myself had it not been for my brother (not the eldest) who is very helpful right from the start. I told him to prepay my medical bill and I will pay him back, he did just that paying half my expenses as a downpayment for my appendectomy and plus some assistance in understanding how I can slash the expenses via my health insurance and the additional discount privilege as a Person With Disability (PWD). He assisted my mother at the cashier.
Anyway now I am as weak as a rubberband soaked in kerosene. Pretty bad and ugly but it will improve as days pass by when the added dose of Cinacalcet lowered down my Parathyroid hormone some more.
I also could not eat well, I ought to cry when eating because I could not get the appetite for it. The sad thing is that my mother had to hand-feed me like a baby and it breaks my heart, it is because I could not easily roll on my left side which from the last weeks I still can do it but now I am unable to.
Sleeping on my left side cannot be possible anymore because it feels just like when I am sitting, I could breathe so I have to lay down on my back for that matter. I just hope that I could be able to straighten my backbone with some kind of miracle from God and that could really change my life for the better.
Now the breathing difficulty has gone up which I now have to contend with along with this pain in the surgery site on my navel area. I also have to poo inside my room to a pot and let my Mother do the dirty business for me in wiping my behind.
I have a marked weakness which might came from the infection and I am in an antibiotic regimen to clear it up. Not much o problem on the issue but my recent body changes and weakness really is my biggest torment now.
You mention improving your bone health...What do you mean and how does one accomplish that?
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If I were to accomplish in lowering down my PTH levels my bones degeneration would reverse. That is possible if I would doubledown the Cinacalcet dose which my Endocrinologist prescribed me to take plus keeping my phosphorus levels down plus the Calcium too that I have to take everyday as well.
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Ah ok, so it's not as simple as a different diet...Must be frustrating for you. How do you keep your attitude positive?
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I think I am just crazy trying to live when everyone actually had given-up. @galenkp
The appendectomy was a mistake though I think because it could have been my ticket to rest for good.
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Well, it must be difficult but somehow you're managing to keep it all together so it's a credit to you. All the best.
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Sorry for all these new health changes you have to go through, but I am so glad to find you here today, since I have been worried about you not being here for those few days, which is not a normal thing for you, so I thought something had to had happen and so I am so glad to hear back from you and always praying for your strength and recovery dear friend.
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Stay strong and let not your will be diminished.
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