First, it is different, secondly, than you think. "Wilhelm Busch.
Grey November. Snow and Rain. The view out of my room in the hospital on 11/08/2016.
Fever.
Often around 39 Celsius (102.2 Fahrenheit). The planned tooth surgery (for 10/24/2016) was cancelled or rather postponed due to my condition.
Since Saturday, October 22nd 2016 I’m back at the hospital. Around the clock I receive antibiotic IVs. Changing supplements, but nothing had really worked yet. Furthermore, I receive strong pain medications. The first week of November is terrible. Along with the pain and fever comes a lot of night sweats. Three to four times a night I completely sweat through my bed sheets. The nurses have to change the sheets every time. Not only the sheets, but also the pillow and blanket are completely wet and have to be changed. During the day alongside the pain and the weakness I am also bothered by a few other problems: no appetite, no thirst and a strongly different taste sensation.
Because of my catastrophic blood work I’m getting tons of erythrocyte IVs. I haven’t counted them anymore since I’m more or less in a coma. Luckily at the beginning of the third week in the hospital it is slowly getting better. By the way not only the tooth surgery, but also the third round of the Vidaza treatment was postponed because of this crisis and it’s going to happen in the week of **11/07 - 11/13/2016 ** right here in the hospital. Saves some travel time ;-)
As I mentioned before, during the second week of November my condition finally gets better. On Monday, 11/14/2016 I finally get to go home after days of begging. From now on, Sabine will take me to the hematology at the Kuechenwaldklinikum twice a week. Close meshed monitoring of my blood count. I still have to take strong antibiotics as well as mycosis aids, virus resistant preparations and pain killers. As soon as my hemoglobin count drops under 5.0 I receive two bags of erythrocyte IVs. This will keep me alive.
And of course my little Miss Sunshine Lotta.
Lotta is decorating sugar cookies, 11/28/2016
Lotta and her favorite toy, 11/30/2016
With this Recovery Diary I want to not only write about my progress (or regress). Most importantly, I want to reassure those who are in a similar situation. No matter if it is yourself, a member of your family or a friend who is affected.
To be continued...
You can find the previous articles here:
- Part 14: Carpe Diem
- Part 13: Roller Coaster
- Part 12: Slack Period
- Part 11: Farewell and new beginning
- Part 10: Land Ahoy! - The big Update
- Part 9: Russian roulette - decision for life
- Part 8: Living with MDS - I just wish for more time...
- Part 7: What is Steemit!? - 33th wedding anniversary.
- Part 6: Club Nautique - The wireless mouse on the operating table.
- Part 5: The sea calls! - It goes to the South!
- Part 4: Tests, anticipation and the valley of dark shadows.
- Part 3: The 72 Hours Rule - Finally Home.
- Part 2: "By the Wind" - Celebrate a birthday in the hospital.
- Part 1: In the isolation ward of the hematology/oncology. - What's actually happening in my body?
