I've been Steeming for more than a year, while my "real life" slowly slips.

in life •  7 years ago  (edited)

I started here without expectations.

My husband believed I had something to offer this new platform.

I didn't think it would be my companion during difficult times.

I didn't even anticipate those difficulties.

I certainly didn't think it would spark creativity.

I've never claimed to be an artist and still don't.

I most certainly am not a writer.
Yet here I still am a year later, still having a go at both of these things.

Why ?

Because steemit became my world as my world slipped away.

The year that preceded the past year was epic.
I was networked in the community through sporting associations, work, parents, school and a grand charity commitment.

As my health declined those things too diminished to nothing.

My only constants were my enduring husband and children and Steemit.

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Tomorrow I'm going back to hospital.

I need to get better.

I will have Tests. That is all I know.

A new doctor is reviewing EVERYTHING.

Thank you new friends.

I have spoken to one of you for real.
Posted actually snail mail to 2.
And promised but as yet not followed through on a little parcel to 3 others.


I have read more than once people refer to steemit and The real world.

Yes we are human. We usually like / need the real world physical interactions.

But my next door neighbour doesn't know my name.

Doesn't know my current condition.

Doesn't know I haven't worked for months.

That when we pass in the hallway that, that is the only time this week that I have stepped out the door.

That I spend my time expressing my feelings in amateur rhyming and accompanied doodle drawings.

Didn't rally around me when I needed support.

Steemit did.

People I have never met in the "real world."

Thank you.


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Hoping for nothing but good news from that new Doc. We all love you and hope to see you back to steeming soon! <3

It is lovely to hear from you. I am waiting in the transit lounge for my bed to become available.
Your friendship is a silver lining of this process. I say process instead of journey. Journey is over used these days and I'm way too stationary to call what I'm doing a journey.

But it's been SOMETHING! I don't want to go back to who I was, I just want to look to the horizon with ambitious plans. 😊

:) Just remember it goes both ways. You helped me through a lot of things too and it's even more inspiring to me because I didn't know what you were dealing with. Your ripples helped change me, I'm sure of that! Never forget:
https://steemit.com/colorwheelart/@clayboyn/you-are-so-much-more-for-my-friend-girlbeforemirror

This is a beautiful post. I hope you recover soon and wish you all the best.

Thank you for commenting and your lovely message.

Im sorry to hear that.

hopefully you get well soon.

Rest assured. strength and confidence will make us better

Thank you for your supportive message

This was a very beautiful and touching post. Sometimes people don't even think about how technology like this can help people dealing with really difficult situations like yourself, they are too busy trying to make money or make a name for themselves or whatever.. But your post, reminds us.. That, there's a lot more going on here than just more freedom and economic opportunity.. There's something here that can help people like yourself who.. And I don't know your story, but just based on your pictures and what I read.. I'm guessing you have a form of cancer and.. It seems like you're in a very difficult place.

I'm glad to hear this place has helped you out, it has helped me as well and I hope your health issues get better and improve! Thank you for sharing your thoughts and all the best to you!

I have a connective tissue disorder which effects any part of the body. It has caused wasting of my muscles over the past year when I was finding treatment for brain fluid csf leak. Eds deconditioning is a difficult thing to come back from, but I am determined.
I was previously involved in charity work which involved marathon running last year. Because I couldn't run anymore I did a head shave for the kids charity and to support my team mates. When they reached their $20k target I buzzed.
It didn't help my appearance as my health declined, but to be honest it was an improvement in the bedhead dreadlocks.
https://steemit.com/life/@girlbeforemirror/buzz-for-bravehearts

Awsome! Buzzzz. Hmmm ima read up on the connective tissue issue. Truly hope you find answers and solutions. Blessings

So true @apolymask

You too are a bright shining light here. I will pray for your new course of treatment. Namaste

Thank you lovely lady

I'm glad you found comfort here in Steemit. My real world, which basically is the four corners of our house is also very different from this platform. I've only been here since July but my experience here has taught me things I never would have learned outside the platfrorm. Thank you for still taking the time to help other Steemians. I will pray that this new doctor will bring us good news.

Thanks for the positivity you have brought here in that time.

I'm praying for you...
Miracles can happen anytime.
Keep fighting. I'm sending my love, prayers and my hugsss

xxx

Thanks sunny ☀ 😊

Thank you for sharing! @girlbeforemirror

I wish you nothing but the best. Cheers for a better health and a better life!

Thank you

I would say you are a writer and an artist. Artist have no class or rules to follow no guidelines no judgments, just expression. And you seem very well at it! So true about "neighbors" and real people :p. Sending you good vibes @girlbeforemirror. Hopefully this new doctor is amazing :)

Thanks, I hope so too

I really hope these tests will be the ones that help you. Thinking about you and praying really hard for you. Love always, Hope xx

Thank you hopey 😊

Wishing a quick recovery and a healthy future :)

Wow. Thank you for sharing from your perspective. I know I only just found your blog but I completely see your point. Praying for your recovery.

Beautiful post well written and addressing some sort of guilt I guess most Steemit enthusiasts feel. However I have gotten more out of here in a month (creatively speaking) than five years. The "real world" is where we are but Steemit interactions make my real world a little brighter. Good luck with your medical situation.

I wasn't saying that people in the online world aren't good enough or anything, rather that there are people that need more than just online interactions. And not that online interactions can't be just as intimate. I'm sorry if I didn't express that clearly enough and if that hurt you in any way.

It's always a pleasure talking with you, and I very much enjoyed speaking with you on the phone as well.

We must always rally and support each other. And unfortunately, you rarely find that in the real world the way you find it online.

I hope they finally start figuring things out for you. I know things are miserable. You're always welcome to contact me to talk. Even about nothing in particular. I'm always here if you just need interaction, or to vent, or to cry, or to laugh, or to have someone to make you laugh, or if you just need cute pictures of animals or you need cute doodles to cheer you up.

Whatever you need, if it's something I can provide (within reason, of course, I can't fly out there with Nova to have him shake your hand), I'm here and happy to help. I'm also here for your husband and your kids if they need an extra outlet, because it's not easy for them, either.

Much love. Hang in there.

Darling darling @novaatebatman I don't recall any moment in which you hurt me. I am the one who has unknowingly giving you the impression that I am hurt.
On the contrary darling man. You are the only real time voice I have heard in a conversation and I am beyond delighted and honoured to claim that.
Bless you. You are fabulous. If anything I intended to say that you and other steemians have filled my world with real people and real life beautiful intentions.
Xxxxxxxxxxxxxxxx

I just wanted to make sure I didn't make you feel bad, because I also understand the extreme isolation that severe chronic illness brings. </3

I intend to take a crack at drawing myself here in a few minutes and livestreaming it. (Meaning, you can watch it happen on youtube if you'd like.) Would you like me to draw you as well? I need to practice drawing not-super-cutesy. And I'm getting warmed up for tomorrow. As I intend to do another weekend of livestreams. (I did about nine hours of livestreaming last weekend, but only on one day because I was violently ill the other two days.)

Oh... X. But you do super cute so well.
Cute dunny brush tigger 😂
Go for it!
I am not capable of too much atm. I just took some medication from the lovely nurse. Because it's tomorrow already. So it's lights out for me.
I will wake to a masterpiece I'm sure. Spiked hair, a good solid set of teeth, a head spewed on slightly lopsided, and a long neck and I think you'll have nailed it.
Happy streaming and Steeming 😁
Maybe I look a bit like a Lego man with helmet hair.

I have no intention of giving up the super cute. I just want to be able to do more than super cute, that's all.

This is one of my sons favourite books. I'm feeling a bit like this wonky donkey at the moment.

He's cool, but definitely has some issues.

Some people with rare diseases call themselves zebras. But that sounds way to elegant for my style.

I'm a spunky hanky panky cranky stinky dinky lanky honky tonky winky wonky donkey

heehaw!

I am praying for your recovery @girlbeforemirror

I have first hand knowledge that you are an angel. Blessings to you in your journey.

Perhaps an overstatement there . I'm no angel I assure you 😈. I'm not even slightly reverent. I just stubbornly refuse to give up on the positive qualities of humans. Every human has something in them that is beautiful.
I used to believe that, then life had me question that and trust no-one. I am still a vicious protective mumma bear, but I am prepared to believe in people again and proceed with caution.
The humblest of actions can indeed have a remarkable and sometimes unknown impact. And it usually costs you nothing, except gambling to trust.