Good News and Bad News in the life of lynncoyle1 and briancourteau

Hi everyone,

I know that I've said it before, but I think I'll begin every post with...

Thank you everyone for your continued love and support. You all amaze me!! :)

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I've always liked to hear the Bad News first, so here it goes:

Has anyone heard of Burning Mouth Syndrome?

For the last few days, Brian's entire mouth and tongue have been inflamed, red, and unbelievably painful. He does have tumors on his tongue, so we thought it was that, but after visits to the doctor yesterday and today, he's been told he has Burning Mouth Syndrome, and besides Lidocaine Cream to numb things a bit, there doesn't seem to be any medications for it. I went online to research more, but then I thought, that I have all kinds of great people at my fingertips here, so what better people to ask, than you?! @gjones15 mentioned Apple Cider Vinegar, the doctor said stay away from spicy foods, carbonated drinks, alcohol and cinnamon, but that's about all we have to go on at the moment.

Any advice, personal experience or tips you have would be greatly appreciated by both of us!

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So here's the Good News. We moved to a new apartment yesterday, just a few blocks away from our old one, but this one is on a raised first floor as opposed to the third, so that means a lot less stairs for Brian to have to manage. It also has a lovely little pool so that he can soak his tired bones in throughout the day when necessary. We are spending more and more time at home now, so I must admit that I am happy to be able to wander around a bit outside of our four walls and still be nearby if he needs me for anything. As you are well aware, I don't like to venture too far in case Brian has a seizure. Thanks to all of you and @davemccoy's fundraiser, we've got enough meds to last a long while, so hopefully there will be less seizures in our days. Thank you again. (I'm going to keep saying that forever :)

Here's the spiral staircase/death trap in our old apartment and Buddy testing the waters himself, versus the shorter staircase in our new place :)

This apartment has more windows and feels much brighter in every sense of the word. I even have a view of new life, these babies, from my kitchen window :)

It's night time now, so I'll get my own photos of the roof another day, but here are some that the rental agency took.

We are some distance from the ocean, but we can still see it from the roof. Nothing relaxes me more than that view!

Brian is so happy and relaxed here! Our old apartment was very tiny and he said it was terribly depressing lying in bed all day in the dark. The brightness and ability to be outside while still at home is such a blessing, and I have to thank our friends here in Playa del Carmen who found this gem for us. Another upside is the price; it's basically the same price as our last place, but 10 times the home. We feel very fortunate to spend our days here together and I feel it's so very important for Brian to be comfortable and happy during whatever time he has remaining.

I just stepped outside and snapped this photo of the moon; it is such a beautiful evening out!

I'm so happy to share our new home with all of you! Thank you again for your continued love and support! xo

And please, if there's anything you can tell me about Burning Mouth Syndrome, I would love to hear it!!

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