How worst it can get? Back pain, overall body joint pain, speech disability, I was thinking what kind of disability if one is unable to eat in a normal upright manner because I can't do that, I have a disability of performing that.
Then my appearance, difficulty in breathing. My other internal organs are diseased as well. My ears are ringing and I don't know what is the cause if it is from the medicine I am taking or just from my brain or a substance overload in my system which I suspect is the culprit.
I have a myriad of imbalances in my body. A hypo and hyper of a lot of things which more importantly is the hyperparathyroidism that already caused my backbone to collapse and maybe caused my Leontiasis here on my face and mouth.
Then comes the worst that will come and God forbid in my existence, something that rattles my whole being, it had shook me from my emotional and mental foundations. That is by realizing that I might be going to lose my eyesight, and that I might going to get blind on top of all that already happened in my body.
I do not want it, none of it, and I can accept some but losing one's eyesight is just too much to bear. Thinking about t makes me feel so depressed as I can imagine just how hard my life be as I cannot do anything anymore for being just like a vegetable.
It is the final blow for me that I cannot do anything. My mind was thinking now that if that will come to pass, I want anyone to hire an assassin to take my life once and for all because body seems to be incapable of dying while other patients just dies fast while I am dying hard.
I still wanted to continue my life normally and I am okay also dying anytime, it is a 50/50 desire for me. But for now I am just doing what is right which is to fight in order to win. I have steemian friends that fights with me but I also want them to pray fervently, pray with utmost diligence for me not to get blind. Please pray hard for me.
Prayers of healing for you brother.
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Yes thank you for all your prayers @prime-cleric
God Bless you.
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YOU WONT LOOSE YOUR SIGHT YOU WILL BE HEALED JUST BELIEVE.
Upvoted this
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I hope that you would get an angel's tongue because of what you said @godswill so it may come true.
God Bless you.
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Your right, you do have friends who would love to see your life improve beyond the hopelessness that you express as to the seriousness of this condition. I understand the Assassin joke, wanting to give up, but it’s not over yet and let’s see what surgery can do to remedy your pain.
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This is just FUD in my life at it's best.
Will do what I can despite some pains discomfort and mental burdens by the disease itself and the money aspect of it as well.I just can't put my mind to it that is why maybe some steemians admire my braveness while possibly others had committed suicide already.
God help me and thank you too @ghostcode
God Bless you
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Life may have its rough patches but always look on the brighter side! I upvoted and followed you and will keep you in my prayers!!
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The community prays for your healing dear @cryptopie! We are here for you! Laban! Aja! :)
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You have a kind heart @shellany
God listens to your prayers I believe.
God bless you for all the support you are giving me.
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It's all about faith, like you know it will rain because you believe. I know He sees you and your heart. You never know but you have touched a lot here by just being you. Continue to focus on the good, @cryptopie. :)
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Get well soon. God will take care of you.
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I pray for you everyday @cryptopie! May God hold you, comfort you, strengthen you, and guide you in perfect ways. Blessings
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ipagdarasal ka namin @cryptopie at nawa ay hindi maapektohan ang iyung paningin. tama lang na labanan ang iyung karamdaman at huwag mawalan ng pag asa.
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Salamat sa supporta @gabriellasam
Samahan nawa ako at kaawaan ng Diyos dahil mahirap na dalahin sa damdamin at sa isipan itong malaking problema ko.
Pero salamat ng malaki sa mga Steemians na may magandang loob at nakakaramdam ng awa sa akin, binibigyan nila ako ng lakas ng loob at kasiyahan kahit papaano.
Pagpalain nawa kayong lahat ng Diyos.
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@cryptopie check your discord.
YOU will get better we will all have your in our minds and heart! stay strong brother.
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Dear Cryptopie,I hope god gives you all the strength to overcome this pain. I have seen my patients health go on a rollercoaster ride. Medicine and science is there - but prayer has always helped. I Pray for your speedy recovery and if i can be of any help - please do post me in chat - I am an ophthalmologist and I have friends and collegues in Phillipines (rizal medical college) who can help you if you would like to. regards.God bless.
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Thank you for your support @anadikc
I do't know how will Leontiasis affect my eyesight but if you could help me in the future and t mightbe soon, I would contact you here at steemit too.
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Dear @cryptopie, I am sorry for replying late.I was out of town for a surgical camp. The problem with the condition is that - due to abnormal growth of bones two things happen - they start filling up the foramens - (basically holes from where you nerves - optic/oculomotor/etc) leave the brain. This can cause compression and hence the symptoms. Second , the orbit is a small space of around 30 cubic centrimeters. This can get compartmentalised due to the bony growth causing compression of the structures and cause proptosis. (eye bulging out). If possible an xray of your orbit/head - Anteroposterior and Lateral or if you already have it CT- Axial/coronal and sagital view with 3D reconstruction can help me help you figure out the exact cause. Then we can proceed further with volume expansion surgeries if required. Still praying for your recovery. Best Wishes.
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Thank you Dr. for your reply.
It seems that there is still a way for solving these problems on my bony growth but I will have to do it in steps with my parathyroid on the first of order to solve. God help me.
God Bless you Dr.
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yes. pth and others can be controlled simultaneously. If you do have ct or xrays i could advise you better. you can share it with me in private chat. confidentiality and medicolegal aspects will be maintained. regards.
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I will be seeing another endocrinologist maybe this week @anadikc
I haven't got any result yet but will provide you soon enough.
But I am OK with my privacy wide open as I am trying to get help from the public.
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will be waiting. best wishes.
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I'm praying and believing for you to be healed sweetie. It breaks my heart to know you're hurting in anyway. Stay positive and know that God will carry you through no matter what! xoxo
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The mental burden on me is so great @sallysmith rather than what is happening now.
I am thinking of my future as the disease itself is progressing plus much more of what I have.
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