The Preeclampsia Registry Information

in preeclampsia •  7 years ago 

Help be part of the solution!
Preeclampsia and related hypertensive disorders of pregnancy threaten and take the lives of thousands of moms and their babies every year. These disorders, including eclampsia and HELLP syndrome, remain a medical mystery with no known cause or cure.
That's why the Preeclampsia Foundation created The Preeclampsia Registry, the first and only global collection of detailed patient reported information for use by researchers. The goal of this registry is to accelerate the discovery of the causes and options for prevention, diagnosis and treatment.
Now you can be part of the solution by participating in The Preeclampsia Registry. If offers a confidential and secure way for those affected, as well as family and friends, to contribute their stories and medical and pregnancy histories.

If you have been affected by HELLP Syndrome and or Preeclampsia, being able to share any information from your experience to the registry would be play such an important role in building future tests, research and help save lives.

For more information and or to participate in The Preeclampsia Registry by visiting www.PreeclampsiaRegistry.org. You can also email [email protected] with questions.

I have been an advocate for going on six years now and continue to learn and share the message to others in the hopes of helping fellow parents and survivors of Preeclampsia.

I hope you find help and information in this and that it helps someone.

Take care.

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