Just a quick post to boost the signal - next month (March) is Essential Tremor Awareness Month, but today is #RareDiseaseDay.
While I haven't blogged about my condition recently, I live with it every day. So does my family. The severity of my tremor ebbs & flows, but the support, particularly from my hubby, is as steady as a rock.
This video was taken by him last May, a short time before I got my diagnosis. It's actually the second take, because he stopped recording the first time when I started talking. Silly man thought I was talking to him so he stopped recording the first time - like I could make it through the whole video with saying a word! You'd think, after 32 years together, he'd know better!
I can no longer drive, and my tremor has progressed to the point that when it's triggered, my diaphragm spasms so much that I can't speak, only stutter. However, I'm incredibly lucky that I'm able to do things (a story for another post) to help control/calm things down when I really start to rock 'n roll.
On the plus side, though - I've dropped a bit of weight since then (most of it was gained because of medication I was on). You'd think that, being such a mover & shaker, that I'd be a size 2 by now!
For more information -
https://rarediseases.org/rare-diseases/essential-tremor/
https://rarediseases.org/rare-disease-day/
#share2steem #powerhousecreatives #NORD #EssentialTremor @RareDiseases #ShowYourStripes #ShowYourRare #EssentialTremorFoundation #Tremor2019 #RareDiseaseDay2019
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hugs!
am glad you have a loving hubby by your side, Traci
i love that you still can have a little humor of your condition
<3
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Thanks so much, @thekitchenfairy! It's the humor that helps get us through the craziness of all this. And hugs right back atcha! 😊 🤗 ❤️
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Well, it's cool that you can approach everything with humor. Otherwise it would be quite difficult.
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Thank you for putting this out there to make us all a little more aware! I ❤ you wicked hard. Your husband sounds like he's got a good sense of humor, and even better that he is such a good partner!
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I read this on Saturday and wanted to comment then, but as you know, life gets the better of us sometimes. I can't believe it's a year since you were diagnosed - I do remember. Anyhow, I admire your fortitude and bravery sharing this video. I am sorry to hear that the condition has progressed. The Husband asked how you manage to type and I said that I'm sure you just do!
We both send our good wishes :D
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Congratulations! Your @share2steem post has been featured in our weekly curation showcase which you can check out at the link below!
Keep up the AWESOME posts!!
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Love your positive vibe AND your gif!!
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Firstly, big big big hug. Really, I want to give you a big hug so desperately.
You have just shown me what courage is. To see the beauty in the midst of challenges. And you are rocking it. I know it is not easy, but you are painting it with humour still.
And happy also for your supportive husband. You are one of the best, @traciyork. I am not aware of this until now. Sending all positive vibes to you.
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