sparsh shah

“I don’t see myself as disabled. I just dis the ‘dis’ from disabled. Most people with disability always keep thinking about their disability and that makes others think about it too. I want to be the courage of such people,” says Sparsh with a smile.

Sparsh started learning Indian classical music at the age of 6 and is a student of Pandit Jasraj Institute of Music (PJIM) since 2009. He also learns American vocal music.
This condition makes his bones extremely fragile and brittle – even a hard handshake can break his bones. He cannot bear weight on his hands and legs, so he cannot walk or run like other normal kids. He has had more than 125 fractures in the first 12 years of his life already and the doctors cannot predict how many more are to come.

In April 2015, Sparsh participated in and won the prestigious talent competition Young Voice of NYC, and was honoured to be made the ‘Youth Ambassador’ for St. Jude Children’s Research Hospital. He now supports the hospital in spreading awareness about the fight against pediatric cancer.

Sparsh was also a member of the Watt NXT Robotics team that won at the state and regional levels in the US. He participated in the first World Robotics Championship in St. Louis, MO in 2015. Sparsh won the first prize in the speech competition about Dr.Ambedkar at the Indian Consulate in New York City in November 2015. Sparsh also participated won the Swardhara Singing Competition organized by Marathi Vishwa, New Jersey, in February 2016.

“Dreams are not enough, Hard work is what turns them into reality! And so, he makes sure that he works hard enough to make his dreams come true,” says Jigisha Shah, Sparsh’s mother.