It is very weird. I would say that in my experience dealing with people with PSSD that they tend to be 16-24 years of age when taking the drug (although that may be due to who is going online to talk about their struggles). I run www.pssdforum.com and moderate the www/reddit.com/r/PSSD subreddit, and those collectively have few hundred members. The older yahoo page used to have a few thousand, and this doesn't include the many many people who message me on Reddit telling me that they are noticing this too.
So even if 10,000 people (a high estimate) had it in america (where I live), that may only be 1% of all the SSRI users. So overall it is pretty unusual for it to stick.
Yes but it might not be the SSRI itself or on its own (as you will know with your education) there could be a number of factors that interact with the drug itself, could be a particular genotype or phenotype that is susceptible.
Microbiome is also an important factor these days (would come into phenotype).
I'm also aware that there have been bad batches of pharmaceutical drugs - not just tampering but contamination is a potential issue whilst rare it does happen. There were cases of eosinophilia myalgia syndrome from tainted pharmacy batches of L-tryptophan in the 80s which were traced to a Japanese lab.
I'm curious you mentioned you have your own theory - would be interested to know what you think given your clinical knowledge and your discussion with others who have experienced it as well as yourself.
Do you have a good psychiatrist or other physician (e.g. urologist) who you are seeing about his and could do some digging on your behalf - maybe even do a paper on your case? The important thing with these rare reactions is that they have to reach the awareness of the medical community before anything will be done.
It was similar with the association between SSRIs and suicide.
At first people thought it was just the normal improvement in mood that was causing it - it was only after very carefully looking at the evidence that it seemed there was a genuine problem related to the drugs themselves.
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Yea, I recognize that there are plenty of factors that could come into play.
In all honesty, there are some people who come to my site, and probably are just really mentally ill: and it's not from the medicine. A lot of them get really angry about me admitting that. But, I think that admitting that there are many factors is the first step in putting forward a convincing case of why the others cannot be true. Not everyone who hops on the internet and claims a drug damaged them is sharing the medical truth.
That said, I have found many people where just about no other explanation can be given. I guess that doses could be contaminated as you mentioned, but I think that PSSD is just the brain getting stuck in the SSRI state. This isn't always a bad thing, and people who have depression permanently cured from an SSRI can tell you this first hand. SSRIs are incredible drugs.
I don't have a doctor that I'm currently seeing that I've opened up to it about. I've told doctors, and heard of doctors believing in it, or hearing of it, but no MD that I currently see is aware of it. My eventual goal is to become a doctor and do it myself. I have the drive and knowledge to do so, and it's more a matter of timing/funding that will influence when it will happen.
I never took the SSRI Prozac, but I've heard that on page 15 (or so) of the warning sheet they state the sexual dysfunction may persist after treatment.
I really appreciate how open to this theory you are. It's hard to get people to listen sometimes.
I posted the first paper that I've had done for a while here. I'll keep adding them as I write/ finish them. A few have been in the works for a while.
cheers
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