I have AOA2, aka Ataxia with Ocular Motor Apraxia Type 2. It is an very rare disease, affecting about 1 in 900k worldwide. I will be participating in a fundraiser in September and humbly ask for your support. Any upvotes or steem will be donated! Thank you and if you'd like to donate directly, the link is below.
https://ataxia.donorpages.com/WalknRoll2017OC/mjaguilera/?t=636329469829774215