Good morning my steemian friends, I just want to share my bad experience this early morning. But before that, let me introduce my self to share who I am.
This is Adam, doing his favorite thing, tossing rocks to the water.
My real name is Neli, I was born in a small village in Garut, West Java. Indonesia. I'm a happy lady, humble, humorous, simple and a bit sensitive. I never think anything bad about life, everything happened for a reason and I always take the positive side from that.
I got married to my husband, @ezblog almost 10 years ago and have a beautiful son, Adam. Starting at 18 months age, I saw something change with my son, a nightmare that completely changed the real me forever. I lost my real me, I got more sensitive, I'm not happy as I was, no more joke as usual like before but I'm still humble though. All because of my son diagnosed, AUTISM.
We live in south Seattle but we put my son in a different school district, in order to do that we have to rent an apartment so my son can study there. My routine is busy since I have to go back and forth between my house and the apartment but that will end soon since Adam already enrolled in a new Autism School, Gersh Academy.
The parking space is damn compact, yet, the car next to me always park so close to my car. My car only has one side to get in and out because the other side is against the wall. One day, I have to asked my husband to write a note to the owner of that car.
The note was so polite and politely asking the owner to park a little further from my car because my son and I are having a hard time to get in and get out. Also due to Adam's autism, he won't understand if he opens the door too hard and hit the other lady's BMW.
The note worked. The next day the owner park a little farther away. By the way, there is an extra line on her driver side so she has more room. (I finally found out that the driver is a mom too and has two kids younger than Adam.)
One night we went to spend a night in the apartment and I just get in to the parking lot. She was unloading things from her car and was taking her time with her side door wide open and that wasn't usual to people who seeing somebody want to park next to her. I had to wait for her for quite a long time and park after she was done. I didn't say anything and forgot about what happened the next few hours.
This morning, as usual, I am taking Adam to school at the same time at 8;45 am. She was there too, she was getting her kids in the same side as my driver door side. It was my fault, I pressed my car's remote and unlocked the door and Adam running into the door. I ran too try to hold him from opening the door so won't bump into her. Too late, He opened the door already .....Gosh, the situation escalated with her and she turned it into a big thing.
She yelled at me: I said good morning!
Me: Oh morning (I was busy talking to Adam not to open the door)
She: I was here first and you have to wait until I'm done.
Me: I try to hold the door so we won't hit you and my son has autism he won't understand and he needs to go to school ..
She: My kids also needs to go to school and I was here first! Are you a King or something?
Me: Excuse me! My son has autism, I told you he won't understand the meaning of waiting ... BTW, you have a big space!
She: What space? Yelling at me louder ..
Me: Look at the space next to your driver side!
I wasn't sure if she already stopped or still talking! I just need to get out before it got worse and it isn't worth it at all ...
What in the world?? People like her for example is so rude. Acting like that this Early morning? in front of kids?
I got into my car and slammed the door. I was holding my anger not to get more angry in front of her kids and Adam who are looking at us yelling at each other. I drove away and finally cried .... I was still crying until now!
What made me started to cry was, is that how people treat a special needs child in general?
Why don't they think as "MOM TO MOM" or "PARENT TO PARENT" when they heard the word "AUTISM". It doesn't mean we want people to treat us like a KING OR QUEEN and it's not what we want that our kid to become special needs!
WE WANT TO BE HEARD THAT WE EXIST, WE ARE HERE, HURT AND STRUGGLING FOR OUR KIDS' FUTURE.
Thinking about what I should do to make people understand about AUTISM. Really. I don't want my son to suffer! He suffers enough to deal with himself every day, every hour, every minute, every second and every breath he has.
In the end, I'm still Neli who have to get back on my feet with this tough life. Still need to work on lots of things.
Love.
Neli aka @lugina.
Morning kk @lugina
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semua orang punya cerita dan kisah yang berbeda-beda, tapi kisah kehidupan kak @lugina tidak terlalu parah, namun saya yakin dibalik kisahnya yang kakak alami pasti ada hikmahNya, jadi kakak harus sabar dan hadapi dengan hati yang tulus dan iklas, agar anak kakak si Adam bisa berubah menjadi lebih baik.
Doakan saja adam menjadi anak yang sholeh dan berbakti kepada kedua orang tua, Amin.
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I'm with you, I send you the rays of goodness. Just stay. I know you're a very strong woman. I know how you feel. Sometimes (very often) I also feel confused in the face of rudeness and evil. I can't think of a decent answer for the abuser. I just get lost and keep quiet. Of course, all the necessary and witty remarks come to me too late, when I'm at home or the next day. I especially hate such situations when children are nearby. I want to be strong and adult for them. But sometimes we all feel small and confused. I don't know how to deal with it. I hope that someday we will all be kinder to each other, more sensitive to the feelings of other people. I want to believe that.
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Thank a lot, I wish world have enough a kind person as you. The bad things are they bring their life problem and spill it in a bad ways to others ...
We've been very careful in every steps and every words, but sometime we still slip on something unexpected and unprepared. Yet, some of left us wounds that's too dip or too hurt to forget. Either from family or stranger ..
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Morning sister @lugina.. but we are in indonesia at 02:52 PM a clock...
Success is always for you @lugina....
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Semoga perjalanan anda menyenangkan teman baik. Dan semoga hari hari anda berjalan dengan lancar. Dan semoga anda selalu dalam lindungan allah yang maha esa.
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very impotent post
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"ya ALLAH, jadikanlah keluarga kecil ini keluarga yang baik-baik. Berikanlah kebahagiaan kepada mereka. Rahmatilah keluarga ini dengan segala rahmat dan hidayahmu. Engkau maha mengubah sesuatu yang tak mungkin menjadi mungkin."
Doa saya selalu ada untuk kakak dan keluarga kecil kakak.
salam saya buat anda dan keluarga kakak @lugina.
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Amiiin, do'a adalah obat mujarab. Mkasih!
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Amin YRA... Semoga Allah mengabulkan doa kakak @aishara
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Amiin ya ALLAH
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Written from the heart great to read this :)
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Tehnik Terapi autism,
Mungkin ini bisa membantu kak
Beberapa jenis terapi bersifat tradisional dan telah teruji dari waktu ke waktu sementara terapi lainnya mungkin baru saja muncul. Tidak seperti gangguan perkembangan lainnya, tidak banyak petunjuk treatment yang telah dipublikasikan apalagi prosedur yang standar dalam menangani autisme. Bagaimanapun juga para ahli sependapat bahwa terapi harus dimulai sejak awal dan harus diarahkan pada hambatan maupun keterlambatan yang secara umum dimiliki oleh setiap anak autis, misalnya; komunikasi dan persoalan-persolan perilaku. Treatment yang komprehensif umumnya meliputi; Terapi Wicara (Speech Therapy), Okupasi Terapi (Occupational Therapy) dan Applied Behavior Analisis (ABA) untuk mengubah serta memodifikasi perilaku.
Berikut ini adalah suatu uraian sederhana dari berbagai literatur yang ada dan ringkasan penjelasan yang tidak menyeluruh dari beberapa treatment yang diakui saat ini. Menjadi keharusan bagi orang tua untuk mencari tahu dan mengenali treatment yang dipilihnya langsung kepada orang-orang yang profesional dibidangnya. Sebagian dari teknik ini adalah program menyeluruh, sedang yang lain dirancang menuju target tertentu yang menjadi hambatan atau kesulitan para penyandangnya.
Educational Treatment, meliputi tetapi tidak terbatas pada: Applied Behavior Analysis (ABA) yang prinsip-prinsipnya digunakan dalam penelitian Lovaas sehingga sering disamakan dengan Discrete Trial Training atau Intervensi Perilaku Intensif.
Pendekatan developmental yang dikaitkan dengan pendidikan yang dikenal sebagai Floortime.
TEACCH (Treatment and Education of Autistic and Related Communication – Handicapped Children).
Biological Treatment, meliputi tetapi tidak terbatas pada: diet, pemberian vitamin dan pemberian obat-obatan untuk mengurangi perilaku-perilaku tertentu (agresivitas, hiperaktif, melukai diri sendiri, dsb.).
Speech – Language Therapy (Terapi Wicara), meliputi tetapi tidak terbatas pada usaha penanganan gangguan asosiasi dan gangguan proses auditory/pendengaran.
Komunikasi, peningkatan kemampuan komunikasi, seperti PECS (Picture Exchange Communication System), bahasa isyarat, strategi visual menggunakan gambar dalam berkomunikasi dan pendukung-pendukung komunikasi lainnya.
Pelayanan Autisme Intensif, meliputi kerja team dari berbagai disiplin ilmu yang memberikan intervensi baik di rumah, sekolah maupun lngkungan sosial lainnya.
Terapi yang bersifat Sensoris, meliputi tetapi tidak terbatas pada Occupational Therapy (OT), dan Auditory Integration Training (AIT).
Dengan adanya berbagai jenis terapi yang dapat dipilih oleh orang tua, maka sangat penting bagi mereka untuk memilih salah satu jenis terapi yang dapat meningkatkan fungsionalitas anak dan mengurangi gangguan serta hambatan autisme. Sangat disayangkan masih minim data ilmiah yang mampu mendukung berbagai jenis terapi yang dapat dipilih orang tua di Indonesia saat ini. Fakta menyebutkan bahwa sangat sulit membuat suatu penelitian mengenai autisme. Sangat banyak variabel-variabel yang dimiliki anak, dari tingkat keparahan gangguannya hingga lingkungan sekitarnya dan belum lagi etika yang ada didalamnya untuk membuat suatu penelitian itu sungguh-sungguh terkontrol. Sangat tidak mungkin mengontrol semua variabel yang ada sehingga data yang dihasilkan dari penelitian-penelitian sebelumnya mungkin secara statistik tidak akurat.
Tidak ada satupun jenis terapi yang berhasil bagi semua anak. Terapi harus disesuaikan dengan kebutuhan anak, berdasarkan pada potensinya, kekurangannya dan tentu saja sesuai dengan minat anak sendiri. Terapi harus dilakukan secara multidisiplin ilmu, misalnya menggunakan; okupasi terapi, terapi wicara dan terapi perilaku sebagai basisnya. Tenaga ahli yang menangani anak harus mampu mengarahkan pilihan-pilihan anda terhadap berbagai jenis terapi yang ada saat ini. Tidak ada jaminan apakah terapi yang dipilih oleh orang tua maupun keluarga sungguh-sungguh akan berjalan efektif. Namun, tentukan salah satu jenis terapi dan laksanakan secara konsisten, bila tidak terlihat perubahan atau kemajuan yang nyata selama 3 bulan dapat melakukan perubahan terapi. Bimbingan dan arahan yang diberikan harus dilaksanakan oleh orang tua secara konsisten. Bila terlihat kemajuan yang signifikan selama 3 bulan maka bentuk intervensi lainnya dapat ditambahkan. Tetap bersikap obyektif dan tanyakan kepada para ahli bila terjadi perubahan-perubahan perilaku lainnya.
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Adam ada banyak therapy dari aba, ot, pt ke wicara ...sampai2 kita kasian, hari2 ny terlalu sibuk. Sekarang adam di tk, sekolah seharian dari jam 9-4 .. therapy terbengkalai dan pembekalan di sekolah bukan prioritas mereka, mudah2an di sekolah baru nya nanti, segala kebutuhan nya adam akan kembali normal. makasih zulkarnain ..
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sebuah perjuangan seorang ibu yang tak kenal lelah.
tapi percayalah pada tuhan sang pencipta semua pasti rencanNYA.ibarat kata allah takkan menguji umatnya diluar batas kemampuannya.
kita yang penting berdoa dan berusaha.kembalikan dan serahkan semuanya pada sang pencipta.
Insya Allah suatu saat pasti ada jalan keluarnya.
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Sabar teh...... Semoga nanti di sekolah baru segalanya lebih baik....
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