Why #Memento Matters and Advice For People About TBI ( Traumatic Brain Injury)

in blog •  7 years ago  (edited)

Bonjour tout le monde !!!!

It’s a bit late to say why it was important but I might want to start the memento again to help me find words,so I can continue and finish my story. By the time I am writing this, I have approximately twenty old ideas and ten new ideas to write. I just don’t know how to pour them into concise and precise word, maybe not yet. This late night ( early morning), this post is the one that I want to execute. At least, one of the ideas has gone out there It’s about The Day I Met The Hookah Smoking Caterpillar. I also think it’s wise to ask my brain to stop trying to find new ideas and focus on the old, undelivered ones.

Memento.jpg

Anyway here is why I started # memento,

As a background, an accident is a best friend of mine. It visits me occasionally at the most unpredictable time.Just like a happy tree cartoon; it starts with a happy tune, so we assume that's it's full of enthusiasm and going to be a fun cartoon yet it turns into a bloody event, and at least one person injured in that cartoon. You can imagine that way; only it’s real- life situation.Therefore, I always live my life with nothing to lose though sometimes it conflicted that I still hope to be alive at the critical moment.

About a month ago, I started a tag # memento and contest about a picture with a story.The tag is personally helping me to recollect memories and/or events I lost especially before my accident on may 2016. Without photographs and any other visual memories, I wouldn’t be able to remember anything. I am lucky having to find several pictures of my activities prior to the accident.

So, Let's put it this way

Imagine, your life is a puzzle that contains little jigsaw. You’re connecting the jigsaw since your birth up to the moment you’re today. The puzzle is in good shape because no disruption, you continue doing your puzzle each day and you can always recall or look things without having difficulty.
To me, my puzzle is very disorganized, I connected disorganized past events, and some of the jigsaws were even lost and nowhere to found. If I tried to find, it gives me a headache, irritable feeling, and numbness. And that is because I have a significant disruption with my puzzle.

And the distruption is called traumatic brain injury.

So in may 2016, I went into total shutdown about eight hours before I started asking why I was in the hospital.And, I remembered my first reaction. It was a simple " oh " and a smile with oxygen and infuse cable over me. Everyone was worried, except me not knowing what was happening or what was going to happen. My speech slurred and the people were talking in a foreign language I can't even remember of. For a while, it was a slight trouble in the hospital because the nurse would be confused with my commands as I speak in English ( it's unusual that people here speak English in daily conversation).

It was also exam time in my college and I persist to attend the exam, even my colleagues tell me to not even think about it. The doctor told me, I should be resting my brain for at least a month before I can function again. But, guess what?only a week after I released from the hospital, I went to all of the exams I have.

One of memorable exam I have during that time was when my lecture told me :

" Your speech slurred, your presentation is awful, and the accident is not an excuse for you; you can contact me beforehand and take another day"

I take that word as " no excuse, you can always work things beforehand. If you receive bad result; it's your fault". It's true, in the end, I received a terrible result from that exam. However, the other exam that involved paper project was not a big deal; I still received an excellent result. It was also a life lesson, some people do not give a damn if you're dying or any other reasons. Like Gary vee put it into a phrase " Nobody gives a fuck about your feelings bro"

I also did not really care about my health and very unaware of possible consequences during that time. Neither the doctor told me of what I was going to have after the injury. He only mentioned it's going to take me months or even years to fully recover.

Litte did I know, after four months I grew to be someone who I hate to be. I grew lazier to attend my classes, more gloomy; I hated socializing ( oh yes, I used to be fine in the crowds, but it was troublesome for six months but getting lesser gradually). What I said,is just a tiny part of the problem. It feels you're awake to be a new person, but the reality mixed it up with the past thus creating confusion.

somewhere in avignon.jpg

I am inserting a very serene picture from avignon where my partner was having a posh family dinner on a boat. It's very unfortunate I wasn't there. We need to collect more beans and what not to travel again


If you have any family or a friend having through brain injury recovery, encourage them to write their feelings, show them old pictures, so they remember, take them traveling now and then. Remind them what they used to love and do. Tell them to avoid substances that slow down the process. What they need the most is to rebuild the puzzle and connect the dots. In the end, they can choose to live in the middle or embrace the new identity they construct.

It's ironic that I find myself to love booze and a caffeine addict while dealing with recovery process. I am very aware that I am slowing down the recovery by occasionally forgetting that my brain is suffering. I perhaps will crash in the next five years if I keep continously doing my current lifestyle; I wish to stop. But it is inevitable that working is a necessity and it's fun.

Bonne journée et merci de lire mon blogue ❤

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I was just discussing my best friend and her journey to rover after her head injury due to a drunk driver. I empathize with you deeply. I had a head injury from a pedestrian car accident in 2000, not to your degree, but it has left me with disabling migraine in spring and fall (and as I type). Photos are good ways to reconnect. What was the accident ? I will pray for you to put the puzzle pieces back soon. I'm glad you survived.

@wandrnrose7, I am sorry for your accident and it must've been terrible. Any kind of concussion that happens could leave us with a minor to major disability, like you have migraine. If it is happening continuously, I suggest you to get CT SCAN and visit neurologist. My first month was terrible that I don't know how to speak properly despite my physical appearance that looks fine. Even now, I have difficulty with dealing with the crowds and several disabilities which often mistaken as lazy, irresponsible anything negative you can think of.

Oh I got hit my a speeding motorcycle while I was cycling. According the police report , I was dragged down the street about 400 meters. Then, I went into coma for 8 hours and like I've written up there, I woke up confused. Thank you for your kind prayer <3. I am glad I survived and it has been a life changing journey :)

Wow, you have been through so much! I'm so glad you survived and are doing better. I've had an MRI, but I don't recall having a CT. I am scheduled for Botox injections July 23. It feels so far away during migraine season (Fall & Spring).

Thank you for your kind words. I understand the feeling of being overwhelmed in public. My prayer is your ongoing healing and it's wonderful to meet you.

Or... you could simply keep writing or otherwise recording them for those times when you experience a creative drought. ;c)

Also - you have told an amazing story here - and so personal. I could say more but I think that such will suffice.

@pathforger, I always remember a sentence you say, It was something about the needs to be well fed and well rested before commenting anything. Here I am, it's been about four days. I appreciate the feedback and I began journaling random information I received cause I figured it's a great way to keep things in record because I am well aware, I am having a short span memory. Heck, I can even forget to sleep, eat and basic human being needs but lucky, I am still breathing because it's automatically.

Well, It's something personal and I can't fathom the fact people don't understand, TBI sufferer are Struggling despite the normal appearance we're showing. So, it often causes misunderstanding especially for people who never know the sufferer background. It's the invisible dissability that's both blessing and curse. Like I mentioned we can embrace the new identity we construct or choose to live in between.

Have a great day!

Hey there @macchiata. :c) I honestly don't recall saying that but it does sound like something that I would say. :cP Especially with regards to anxiety.

There is no problem that spending a sleepless night worrying about it has solved. So much better to get a good night's sleep and a great breakfast and tackle the problem head when you are in the prime hours of your day. :c)

We live in the same World where less than 100 years ago people suffering from 'Shell-Shock' were killed or persecuted for "cowardice". My point is that humans have a track record for badly treating those afflicted with conditions that they don't understand.


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Don't worry about persons who don't only fail to understand but fail to try to understand. Their opinions are those that you need to least consider - as they are both toxic and irrelevant. Those who know not may still be insensitive - but at least they 'didn't know'.

Have a great day also. ^_^

If you have any family or a friend having through brain injury recovery, encourage them to write their feelings, show them old pictures, so they remember, take them traveling now and then. Remind them what they used to love and do. Tell them to avoid substances that slow down the process. What they need the most is to rebuild the puzzle and connect the dots. In the end, they can choose to live in the middle or embrace the new identity they construct.

This is a strong word for compassion. No excuse for accident, this person need to be poured with love... really he needs love.... nice sharing...sorry for my English.

@happyphoenix, Thank you for having a time to read. I know that the sufferer of TBI have to be assisted in their daily life despite the normal appearance they have. It's not because they don't have crutches they don't need to be assisted. I appreciate your time to read my personal story :)

Have a great day there bud!

Nice