View this post on Hive: Limited mobility | Unlimited stories: what is a Spoonie and am I one too?
Dear reader - Steem has been renamed to Hive since May 2020. My content therefore has moved with me to Hive, and I hope to see you there: peakd.com/@soyrosa.
Congratulations! Your post has been included in week 4 of the Powa Moves curation post, which highlights quality writing and art from the #teamgirlpowa tag. 💖 Thanks for keeping @teamgirlpowa awesome!
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Thank you! <3
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A new term for Spoonie that is not to do with the Matrix.
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This is such a huge lesson for I have never heard of spoon theory ever before. I was hit by a motorcycle in my back at a low speed in early 2015. Though it didn't any major issues, it physically limited my ability to do much especially bending. This means I can no longer do my laundry (done once per week) because I'll be in pain until the other week's turn. But I can still do that laundry if I wanted to but I choose not to while keeping in mind what it will do to the same body after I have. Thank you for sharing this! :)
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Hey @tezmel, wow, that's quite a story you share here! I'm sorry you've been limited physically, it's so easy to say 'I was hit by a motorcycle' but I know that short sentence cointains a lot of pain, revalidation and confrontation with it <3 Thank you for sharing your story and I hope you're able to use the spoon theory maybe to share with others and/or explain your limitations <3
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What a heartfelt post. Thank you for this level of yourself. It takes an enormous amount of courage to make this kind of revelation.
Which I obviously lack. I have a long term disorder that I don't ignore exactly but that I refuse to admit to. I live life on my terms, and reserve the right to run out of spoons once in a while. If you can't accept that I am completely out of spoons the door is right there. Please shut it behind you because I don't have the energy.
Thanks Soyrosa. Your story has given me heart. I appreciate it.
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Hey @bigtom13! I truly appreciate your comment!
Being vulnerable and 'acknowledging' is not an easy step to take. I've ignored a lot of my 'stuff' in the past, but have discovered being open and vulnerable about it actually helps. I've 'opened up' a few times before and have often, later, getting back: "Thank you for doing this, because you opened up I was able to... [insert awesome action taking]" - so I've learned it's almost always worth it to do so.
It's still not an 'automatic' thing to do for me personally, but I do it anyway.
Thanks for reading and 'seeing' the courage, and for letting it 'give you heart'. Take your time and do things on your own pace,* it's okay*!
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I have heard about this spoon theory but I did not know exactly what it meant. My brain fog did not help remembering the term, thus I never googled it to see what it meant. Thank you for the explanation.
When you have limited energy levels, you need to think your day in advance and try to plan it according to your limitations. It does not mean you can't have fun anymore! You just have to be more cautious not to deplete your energy levels/spoons otherwise you won't be enjoying your day. Yes, there are a lot more things that you need to do or pack before going somewhere, but it's better to be prepared. When we have a "normal" day we tend to forget our limitations and end up drained of energy which is so precious.
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I'm so glad I could 'give back' the term to you @lymepoet! I've noticed people who care about us like using the term, because it can be so much easier to ask 'how many spoons do you have left?', than to try to understand what we mean when we say our bodies are sore, we're tired... I hope some people around you are willing to read it.
Yes, we need to plan ahead more, not just days, but also the whole week - 'that day is heavy so I calculate resting days two days after that one'. It's okay and as long as we indeed stay within our limits we can still do awesome stuff and have a lot of fun. It's a constant finetuning though :D
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Great to hear this experience and relation of the word with that experience, i really influenced by the example of spoon means, we most of the time store lot of thoughts in our mind and we always overthink about that, and this overthinking phase always hold us to do or live our life freely. Thanks for sharing this post with us and wishing you an great day. Stay blessed. 🙂
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Thank you for sharing your thoughts on this @chireerocks! I also believe overthinking limits us too much.
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Welcome. 🙂
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Ive heard this spoon story before! And back then it already made sense.. i think you could also make the jump to steemit. Spoonies use 100% vp and nonspoonies CAN use their slider ;)
I can image that you dont WANT to take the disabled pass because it also confirms what you dont want to.
One of my friends always struggles with rheuma and is also always weighing the facts. 'If I go with you guys now on friday, I will be dead until tuesday' she always says. So she weighs those options while we just jump in
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Ah, yes, I totally understand what your friend means! It's really making choices not only to GO, but also to know you will 'not go' to all the other happenings the day(s) after :-)
Well, yes, to have a permit like that is also a huge step psychologically. Not only does it confirm my situation, I'm also very aware people are not able to see anything about me, I only walk with a cane on some days, most I do not. So well... It shouldn't matter but it does sort of matter to me how they will look at me.
Heck, so much to think about ;-)
Thanks for your comment!
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@soyrosa, the very useful post, maintaining health is the main thing, the success continues friends
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thank you @soyrosa for sharing this part of your life with us, you should really just be doing what feel comfortable doing, and you alone are the only one who knows what that is. they are your choices and the fact that you wish to safe your strength for what you really love doing sounds very wise to me.
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Thanks a lot @trucklife-family! Indeed these are my choices and I'm not planning to make life more difficult, but I do sometimes think I play it on the safe side - maybe challenge myself a bit more from time to time? :-) It's a continued puzzle :D
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Did not know you have this in your life. It must be a challenge to have to keep such a close eye on how to spend your energy, on what to do and what not to do. Makes me appreciate your awesome photography work and lovely Steemit posts and growing success in this community even more!
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Thanks a lot @amritadeva! I don't write about this topic constantly but the story is growing from time to time. These are sometimes sensitive / hard blogs to write so I gladly distract myself from them by sharing photography stories more, hehe ;-) Thanks for acknowledging the photography I do despite of the limitations, it's something I love so much that I know if I ever end up in a wheelchair I'll still find ways to take pictures! <3
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This is new to me, I didnt know about this spoon theory and how it could be living this way. But when I think back on my own life,I have had at least one period that lasted a few months, when I really felt exhausted already when I woke up in the morning and thought about everything I had to do at the day. So I avoided most of the activities and stayed a lot in bed. Much love to you! xxx
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Yes, you know how it is to feel limited, even from waking up! <3 Much love you you in return! <3
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Never heard about the expresion Spoonie, but it has a lot of sense.
I dislocated my knee 4 times and did not really do full checkup (need to check the ligaments...) i know i should but Serbia... So i kinda get that calculating what should or should not do. calculating how to get down from a 50cm high step is not what average people think about.
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No, average people don't think about that! But I can totally relate! Sometimes 10 centimeters are hard for me too LOL. Or I can sit in a restaurant but not stand up from my chair for 15 minutes... Because suddenly the pain 'arrives'. Sorry to hear about your knee though, please try to get it looked after :-/
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All days we learn something new, thanks!
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its useful i liked it i hope the post most people see it and upvote this:)
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wow, i didn't know this about you. May I ask what happened?
I like your positivity about everything x
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Hey @princessmewmew, sure you can! :-) In short: I permanently damaged a bone in my left foot while being on a 9-month sabbatical. It can't be operated on, so I have to learn to live with it. The exact story on the accident is written down here if you want to learn more: https://steemit.com/health/@soyrosa/limited-mobility-or-unlimited-stories-i-took-this-picture-only-moments-before-i-would-permanently-damage-my-foot :-)
Thanks for taking an interest! <3
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oh dear, I just read the story. That's not good.
And you know, I can relate. I have never been able to see very well, and have always worn glasses. Since high school, until bout five years ago, I was lucky to wear contact lenses. Then, I stopped wearing them for about a year, and when I went back to try to get some contacts, I struggled to find a fit.
Fast forward five years, and I still haven't found lenses that can fit. My eyes naturally make a lot of proteins, which means usual contact lenses are out of the question.
I am actually testing a $1500 pair at the moment, and they are my last hope. If they don't work, my ophthalmologist has said he won't be able to help me. Perhaps I will consider surgery, but the issue with my eyes is muscular, and after some time, the surgery will reverse naturally. So I am not sure I want to spend that sort of money ($15000) on a reversible issue.
I live in hope and pray that these lenses work out!
Thank you for sharing your story with me x
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Oh wow! Same here, thank you for sharing your story! <3
It's amazing how much we take our bodies for granted and how much of the worries people have about them we don't notice.
Eyes are so precious and such a big part of our experiences and communications, I can only imagine how much stress it must give you to not be able to see on the level you want and know this might be the last chance you have of finding good lenses.
I was also truly disappointed when my doctors told me 'there's nothing we can do' - OK UH WHAT?! We always assume there must be some solution to our problems, so it's a shock to hear 'no' from some of the brightest people on earth.
I'm going to think a lot of positive thoughts and send them your way, let's hope these lenses work out for you <3
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I had never heard of spoonies before. But reading your story it makes a lot of sense. Thanks for sharing!! And I like your slogan of unlimited stories. Hope to read more of them!
"Je verhaal raakte me en ik heb er erg veel respect en bewondering voor hoe je er over schrijft en hoe je er mee omgaat"
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Hey @bringolo, thanks a lot for commenting! I will sure write more episodes in this series, so stay tuned! :-)
Dankjewel voor je lieve woorden! <3
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Hi Rosanne, Thanks for sharing your thoughts and a new term. I have a a really good friend that this applies to (so I sent this post to her). What I appreciate even more is your openness and that I can learn how to relate and love and understand and help her even more. As a person with full mobility it is not easy to understand the long term limited mobility you are talking about. So thank you.
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Thank you for commenting @sjarvie5! I love hearing that you sent the post to a friend! I hope she learns something from it. The term 'Spoonie' also helps people around you asking things like 'how many spoonies do you have today?', instead of 'how are you feeling'? (This question is often way more difficult to answer).
Thanks for your willingness to learn about limited mobility, and if you can let me know what your friend said about it?
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@soyrosa I upvote this post. please i wait your support for my last post : https://steemit.com/hunger/@burabay/hunger-is-on-the-rise-again-in-the-world
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