PTSD is hard to share about

in life •  8 years ago  (edited)

I have been on @steemit for about a month now.  I don't really have any talents but I had a desire to connect.  What I have to offer here is something that I feel really passionate about.  I'm invisibly disabled.  I have a Traumatic Brain Injury and PTSD.  If you've read my blog then you know.  I'm not on here to feel sorry for myself or get attention for me.  Instead I am on here to raise awareness for people that live with, love people and have friends or family with invisible disabilities. We need your  positive support. 

 I constantly hear "well, you look fine to me" therefore I must be faking it in their minds or I get treated like I am not smart and very dangerous.  My passion was to come here and help raise awareness about invisible disabilities through my story.  Feel free to open a dialogue with me, or ask questions.  If we don't talk about it we will never understand each other.  Not that you'll ever be completely privy on what it's like to have a TBI or PTSD unless you have it.  That's why I'm here.  Some of you might be battling something yourself and want a support system.  Some might just think "hey, I've heard about that" and want to know more.  That's fantastic!

Sharing the stories about how I get here is difficult and it makes me cry frequently.  The strength in which I feel this needs to be done is what is keeping me on here to do it.  I've met a lot of wonderful people through steemit and have a few people that are in for collaboration on working together to raise awareness. That's awesome and I'm so thankful to have this platform and new steemit friends.   

Here are a few of my blogs if you'd like to know some of the back story.  Thank you again for reading.  

https://steemit.com/ptsd/@creativeusername/ptsd-the-day-i-realized-anything-wasn-t-possible-and-my-hope-in-life-was-dwindling-if-not-gone

When I share one of my very personal stories I fight from backing out because it's a lot of hard, personal information.  I have good days and bad days.  I posted a story on here yesterday after I had just gotten triggered.  It was hard and I was shaking as I wrote it.  I just thought it would be a good thing to let others know what it's like when we PTSD survivors get triggered. It's not a conscious thought and we don't "think" ourselves into having these attacks and I personally do not desire the intensity.  If you knew me at all you would know that.    Open a dialogue and talk about it if you have questions.  That's what I'm here for.  Don't however assume that you know more than I do about my own PTSD and think you can school me or think that even though we've never met that you know me and ptsd better than I do.  I have gotten some really good suggestions on here from people about documentaries, websites and treatments for PTSD.  I am so grateful for these people and I can't tell you how happy it makes my heart.  It makes me feel like it's worth all of the angst of posting these personal things.  I've met people on steemit with similar and other disabilities and this is a wonderful and supportive community.  I would like to thank every single one of you who has read my posts, shared them and upvoted and actually opened a dialogue with me.  You are really amazing people.  Thank you for being open enough and curious enough to read about it and follow me.  

https://steemit.com/life/@creativeusername/coma-a-near-death-experience-and-waking-in-a-strange-place

https://steemit.com/life/@creativeusername/life-after-death-and-losing-the-hope-that-anything-was-possible

https://steemit.com/psychology/@creativeusername/getting-drunk-with-strangers-ptsd

https://steemit.com/life/@creativeusername/you-re-ghost


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I believe that everyone has a talent. You are reaching out and sharing about your life on many levels. One of your talents are to share and educate others about PTSD.

thank you lakshmi. You make my heart happy. I appreciate you very much.

I appreciate you too!

This reminded me of a personal story. I cannot go into details but I've had some experiences in war. That was many many years ago and everything in my life was OK. Then one day me and some friends went paintballing in in South Carolina. I was in a ditch and being shot at from multiple directions . One moment my whole life suddenly changed and I was back in the war zone with all the mayhem of war all around me. I froze in the ditch . I was Travs sported back in time. Fears that I left behind years ago came over me. It affected me in a profound way in terms of understanding how people with PTSD felt.

Wow, that sounds really scary and intense. That is how I feel quite often. My triggers are "usually" anything to do with cars, vehicles or any sound they make. It's tough and getting people to understand is even harder it seems. Thank you for sharing your story. Was it just that one time? Also when I say "just" my intent is not to minimize it at all. Just once is enough. too mch really

I was not just once but I rapidly had to find a way out, so I controlled it and killed it. Meditation, focus and re immersing myself into the situation repeatedly and controlling my motions as how I conquered it

good for you. I'm glad it worked :) I just saw a documentary on meditation and PTSD I'd like to try that.

If you feel you can share what happened to you, I will try to help,in any way I can

Wow, Nedspeaks. What an amazing thing to do for a stranger. I've had this for around 2 decades. I had a period of 8 pretty good years where I was functional and doing pretty well. It was still there but I didn't get triggered that often. I moved away to another state and all of the sudden it was severe again. I'm working on getting treatment right now. I've been looking for months but I think I've finally found a really good therapist. I'm just waiting on the paperwork right now. I'm hoping I can talk about this stuff from a more positive space soon :) Thank you so much. It's people like you in the steemit community that just make my heart happy :)

Sounds like you are in the right frame of mind. Best of luck

I'm always open if you have anything you'd like to share. privately or on here :)

I have some past posts about my story to try to raise awareness through my story. but I didn't understand steemit that much and I didn't really have anyone following me. I'll probably repost when I get a broader following. I'm working on collaborating with a few people on here to share each others stories and possibly integrate/collaborate together reach out to survivors and family and friends of survivors. And frankly, anyone that's interested. :)

I love your blog!!!

thanks. I resteemed a lot so a lot of my posts are hidden now. I look forward to reading your blog and hearing feedback about mine :) xoxo