RE: Life...with Ehlers Danlos Syndrome

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Life...with Ehlers Danlos Syndrome

in life •  6 years ago 

Very interesting that you can move like that, thank you for sharing and I hope you feel better.

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That is so kind of you, thank you so much. And yeah us EDS folks are pretty bendy. My eldest daughter Sterling gets herself into all sorts of pretzel positions too. It actually feels good for us to be in these weird positions...sitting like a "normal" person is possibly one of the hardest things for us to do and feels completely unnatural and is very painful.